Charities |
Wednesday 17 March 2010 |
 Click here Parkinson's Disease Society |
The PDS was founded in 1969 by a carer, Mali Jenkins, and is the UK's only charity that exists solely to support all people with PD and their families, friends and carers. For the last 35 years, the Society has campaigned for a better quality of life for people with PD and, through its research programme, it continues to provide hope to those people with the condition that a cure will one day be found. The PDS has over 300 branches and support groups across the UK, all run by volunteers, which provide local people affected by Parkinson's with mutual support and practical help through regular meetings and social events, many raise money to help fund services including Parkinson's Disease Nurse Specialists, therapy/exercise classes, and respite support for carers. The PDS also maintains a freephone confidential Helpline, which is staffed by specialist nurses who offer advice, information and support.
|
 Click here Epilepsy Action |
Epilepsy Action is the working name for British Epilepsy Association. Our website contains everything you need to know about epilepsy - and if you can't find something, email us using our Email Helpline service and we will do our best to email you a reply within 48 hours. "We want to live in a society where everyone understands epilepsy and where attitudes towards people with epilepsy are based on fact not fiction."
|
 Click here Neurofibromatosis Association |
The Neurofibromatosis Association became a registered charity in May 1982. The charity works to:
|
 Click here National Doodle Day |
Two charities, Epilepsy Action and The Neurofibromatosis Association, have teamed up with national Pharmacy chain, Lloyds Pharmacy to launch a brand new fundraising event: National Doodle Day!
|
 Click here Multiple Sclerosis Society |
The Multiple Sclerosis Society was founded in 1953. It is the nation-wide organisation aiming to ensure people affected by MS have the highest quality of care and support they need in their daily lives. It is committed to working in partnership with professionals to promote equitable access to services based on the needs of the individual. It runs the national MS freephone helpline, an award-winning website and a comprehensive information service from the MS National Centre in north London. Across the UK there is a national network of 370 branches run by volunteers and providing services for people with MS in the community. There are also four Society respite care centres staffed by skilled professionals.
|
 Click here MND Association |
The Association was founded in 1979 when a small group of forward-looking people, fuelled by their own heartbreaking experiences of isolation, frustration and helplessness took it upon themselves to end the nightmare of facing the disease alone. The MND Association is an independent charity, with a National Office in Northampton and over 80 local Branches nationwide. They are a founder member of the International Alliance of ALS/MND Associations which provides a forum for support and the exchange of information between the worldwide associations. In 1998 the Association set out its Standards of Care that it expects the statutory services to deliver for people with MND. The standards were developed through feedback they received from people with MND and carers about their needs 25 years after its foundation The MND Association are even more aware of the work that still needs to be done to ensure that the voice of people with MND is heard.
|
 Click here National Society for Epilepsy |
The National Society for Epilepsy (NSE) is the UK's largest provider of epilepsy services. Founded 111 years ago, the charity today offers a range of residential services, provides assessment and treatment for epilepsy, undertakes ground-breaking research and leads in the provision of information, education and training in all aspects of the condition. Two websites have been developed. The main website is at www.epilepsynse.org.uk. A second site, at www.e-epilepsy.org.uk, is aimed at people with a professional interest in epilepsy. A library of articles, monthly listing of published papers with links to abstracts, reviews of almost 200 published papers, updates on NSE's own research programme and other useful pages are included. A key feature of the latter site is the enquiry service, which is overseen by the Information department with back up from NSE's medical and paramedical team. National epilepsy week will take place between 16th and 22nd May 2004. The theme for this year is 'Epilepsy in primary care'.
|
 Click here Quarriers |
Quarriers was originally founded by William Quarrier over 130 years ago to re-home orphaned and destitute children in Scotland.
Today it's a different story. We provide a diverse range of services offering practical support and care for children, adults and families through more than 85 projects around Scotland, and through international partners. Our passion is to challenge poverty and inequality of opportunity and choice, to bring real and positive change to people's lives. We are proud to have won a special place in the hearts of many Scottish people. Support Quarriers and be part of something amazing.
|
With thanks to Katherine Bowyer, EPTA Charity Liason Officer
