SUPPORTING CHARITIES

Epilepsy Action is the working name for British Epilepsy Association. Our website contains everything you need to know about epilepsy - and if you can't find something, email us using our Email Helpline service and we will do our best to email you a reply within 48 hours.
"We want to live in a society where everyone understands epilepsy and where attitudes towards people with epilepsy are based on fact not fiction."

The Association was founded in 1979 when a small group of forward-looking people, fuelled by their own heartbreaking experiences of isolation, frustration and helplessness took it upon themselves to end the nightmare of facing the disease alone.
The MND Association is an independent charity, with a National Office in Northampton and over 80 local Branches nationwide. They are a founder member of the International Alliance of ALS/MND Associations which provides a forum for support and the exchange of information between the worldwide associations.
In 1998 the Association set out its Standards of Care that it expects the statutory services to deliver for people with MND. The standards were developed through feedback they received from people with MND and carers about their needs 25 years after its foundation The MND Association are even more aware of the work that still needs to be done to ensure that the voice of people with MND is heard.

Epilepsy Society is the UK’s leading provider of epilepsy services.  Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.

  • Pioneering medical research
  • A trusted source of support
  • Specialist medical and care services
  • A powerful voice for people with epilepsy

PUK was founded in 1969 by a carer, Mali Jenkins, and is the UK's only charity that exists solely to support all people with PD and their families, friends and carers.
For the last 35 years, the Society has campaigned for a better quality of life for people with PD and, through its research programme, it continues to provide hope to those people with the condition that a cure will one day be found.
The PDS has over 300 branches and support groups across the UK, all run by volunteers, which provide local people affected by Parkinson's with mutual support and practical help through regular meetings and social events, many raise money to help fund services including Parkinson's Disease Nurse Specialists, therapy/exercise classes, and respite support for carers.
PUK also maintains a freephone confidential Helpline, which is staffed by specialist nurses who offer advice, information and support.

The Multiple Sclerosis Society was founded in 1953. It is the nation-wide organisation aiming to ensure people affected by MS have the highest quality of care and support they need in their daily lives. It is committed to working in partnership with professionals to promote equitable access to services based on the needs of the individual.

It runs the national MS freephone helpline, an award-winning website and a comprehensive information service from the MS National Centre in north London. Across the UK there is a national network of 370 branches run by volunteers and providing services for people with MS in the community. There are also four Society respite care centres staffed by skilled professionals.

The Neurofibromatosis Association became a registered charity in May 1982. The charity works to:

  • provide help, support and advice to those affected by either form of Neurofibromatosis, their families and the professionals working with them. To do this we employ a team of hospital based professional Neurofibromatosis Specialist Advisors around the UK.
  • provide relevant, up-to-date information on both forms of Neurofibromatosis for professionals, families and individuals.
  • fund research into both types of Neurofibromatosis.
  • provide activity holidays and breaks for children and adults with either form of Neurofibromatosis.
  • encourage the establishment of local groups and volunteers throughout the UK.
  • raise awareness of the Neurofibromatoses amongst the general public through fundraising activities

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